Another effing update!

I’m thinking of changing the tag line on my blog, that’s if I even have one. It’s going to say ‘The blog of Updates’ because of late that is pretty much all I have managed. I want to change that, that said, what I want and what I do are usually very different things.

Thanks to everyone who has enquired about my Mum, it’s been a very weird time. Two weeks ago give or take a few days, she got sectioned, primarily we think because of her refusal to eat and drink. She’s now in a dedicated Dementia ward where they are trying to work through her issues and use medication to try and give her some sort of peace. She is not being compliant and is starting to kick off with them they way she did in the house and basically not eating or drinking very much at all. It’s really hard to watch and emotionally I have to be honest and say I am finding it very difficult. There are endless processes and procedures to be followed and a steady supply of forms that need completed and all I want to do is crawl into bed and not surface again until everything has been sorted out.

I’m very lucky that work have been understanding and I am hoping that my first session of counselling comes through soon because I feel I really need it. My anxiety has been really bad and despite using some of the techniques I have had success with before, it is not easing any. I need someone else to pick me apart and then tell my how to rebuild myself, installing coping mechanisms as I go.

I know the Fathership has been finding all of this hard too. I worry about him and I have no doubt he worries about me and my Sister. All three of us worry about the Mothership. There have been tears, very many tears, usually mine it has to be said.

I think going forward I probably might not write about this any more, not here anyway. I need a distraction and something else to focus on. I used to say that time was my enemy and when the Mothership was here that was certainly the case as there was not enough of it. Now however, even though I still need to cook and clean and do all the things I did before, I do have more time and yet still I have not been able to write, so perhaps the problem was me all along. I’m like a fence, I need to get over myself.

The intention would be to write more, I just have no idea what it is I am going to write about, but then again do I ever. Waffling seems to be one of my better traits.

I hope you have all been well, feel free to let me know what’s been happening! :)

Keep Breathing…

I’ll start this post tonight, but it is unlikely I will finish. It’s 23.16 and I really should be in bed, but as usual I am not. I’m tried, emotional exhaustion as opposed to physical exhaustion, although it’s there too.

I’m listening, and I can’t hear anything and it’s a blessing, it means all is peaceful, something that in this household has been severely lacking of late. There is no shouting, crying, cursing or stamping of feet. The Mothership is in respite and I can breathe.

A few weeks back a routine glucose check promoted an urgent trip to the hospital, where it was discovered that she has iron deficiency anaemia. They don’t know the reason and because of her level of understanding are not sure they can complete the necessary examinations. 9 hours we waited while she was topped up with both blood and iron. We hoped that perhaps that had been the reason for the decline in mood, but we were wrong and things steadily got worse.

The Fathership contacted her social worker and when she eventually returned his call a visit was arranged. They discussed carers, incontinence clinics, day care centres and medications. There was no discussion about what you do when you feel you’re at the end of your rope and have no strength left to tie a knot and hang on.

We persevered for another couple of weeks, but there was no improvement and neither of us could remember the last time there had actually been a good day. Her new favourite word became no, which she said a lot when we were trying to get her to eat and drink, a vital part of staying alive.

I’ve cried so much this last 2 – 3 months, because there really is nothing else to do when you feel there is no where else to turn. You look at the person before you and in your head you check off all the tactics that you have tried to stop the shouting and crying, and when you realise that you’ve actually reached the end of your list you think how, how the fuck am I going to deal with this person.

In sheer desperation the Fathership contacted her Doctor and outlined everything that had been going on, the lack of eating and drinking and the increase in the aggression and she took the decision to have her placed into respite for a couple of weeks in order that she could be assessed to see if perhaps there were any other underlying reasons for the decline.

I cannot explain the weight that has been lifted off our shoulders even if it is for a short time. How delighted I was to be able to sit down and watch the TV or sleep all through the night, something that I had not been able to do in the last 2 months.

It’s not been the stress free week that I hoped however, one set of worries just becomes replaced by new ones, like how is she getting on, will she kick off with the staff, will she fret for home and also, will she hate us for placing her in there in the first place. There are still things to be done, certainly a lot around the house and lets face it the cooking and cleaning never stops. I badly need to catch up on sleep, because the world is a scary place when you are suffering from a lack of it.

She’s been in for almost a week and I have not yet been to see her. I’m not sure people understand my reasoning, but in order for me to make the most of this time I have been given I need to try and distance myself, because if I go to visit and she is either upset or accusatory then it is going to take away any of the benefit that this period of peace should have.

Others have reported that she is doing well. albeit she will not eat and drink more than the minimum for the nurses either. She seems to like the company and to be honest that was a fear of mine for the last few weeks, that she was lacking the interaction with people other than myself and the Fathership.

We have big decisions to make, but I think we all know that the time is coming when we will have to choose where the best place for her to be is. We can’t seem to make her happy any more and if she needs that connection with others then perhaps she needs to be where that can be provided.

I’m trying to take one day at a time, but already thoughts of her return home are crowding my head, because when you have had that little bit of freedom and realise what life can be like, you realise it’s going to be very hard to return to how things were.

One day at a time eejit, one day at a time. Keep breathing.

(As predicted, this post took me 4 days to complete)

It’s going to be one of those days…

 

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No matter how tired I am this weather I can never seem to get enough sleep. Granted, part of that is my own fault, I’m a bit of a night owl, but when I have the opportunity to sleep a little longer in the mornings it never happens and it’s extremely frustrating!

So here I sit with a banging headache, the next door neighbours dog is having a noisy showdown with the cockerel, as in one is chasing the shadows of birds and the other is trying to call for them. There is housework to be done and people to be fed and I just can’t be arsed doing any of it, no point in sugar coating how I feel, lack of sleep clearly makes me a cow.

I’ve missed not writing and reading blogs, but there has just been no time. It’s something I am going to have to rectify, because honestly, sometimes in the middle of everything that goes on I think it is the only thing that keeps me sane.

This last couple of weeks have been challenging, and it’s a stark reminder that things are going to get worse instead of better. Don’t get me wrong, the Fathership and I face each situation we come across, usually successfully, but it’s mentally and physically draining sometimes. It would be nice to think that in the midst of everything life would stop and give you a break when the shit hits the fan, but it doesn’t, so you have to deal with all these things whilst dealing with life too, which can be complicated enough on its own sometimes.

I’m sick of trying to explain to people what it’s like, or make excuses for the way I live my life or do things the way I do. I appreciate that most people mean well when they say, you just have to get up and do it (when referring to going out), but real life just doesn’t work that way and perhaps if they walked a couple of weeks in my shoes they would realise that. I mean would you get up and leave a two year old child and go to dinner without putting any preparation in place, because that’s what dealing with someone with dementia is like. Any deviations from the normal routine or changes to schedules can have disastrous effects and invoke meltdowns of epic proportions. Sometimes you have to weigh up the pros and cons and ask yourself is it worth having one night of fun to endure 6 nights of torture. When you’re already at the end of your rope and trying to hang on, then answer to that is no.

I’ve wanted to write so many times over these past couple of weeks, but on the rare chances I had to sit down I had nothing to say, because all of this was rattling around in my head and I couldn’t figure out if here was the platform for it, this is after all meant to be a humour blog. Although I suppose I do try to put my usual slight comedic spin on things. Both the Fathership and I agree on one thing, if we didn’t laugh we’d cry.

I suppose in the end, the conclusion I came to was this, it’s my blog, I can write what I want, and it is definitely better writing about these things to get them off my chest rather than keeping them bottled up. I have however (if I can figure it out) turned off the comments on this post. I don’t want sympathy, that’s not why I write, there are people in the world dealing with much worse things. I just need to expel my ramblings into the ether.

Trust me, it’s good to talk – even if it is just to yourself!

Love you all :)